Genomic Data Protection Act

Where This Stands

Introduced

Committee

Floor Vote

Passed

Signed

Currently IN_COMMITTEE. The next step in the legislative lifecycle is Floor Vote.

Version history

Only one version on file - nothing to compare yet. As later stages (committee substitute, engrossed, enrolled) are captured, the redline appears here.

View official text →

The Frame

What this does

If passed, this law would establish federal standards for how private companies handle sensitive DNA information, ensuring individuals maintain control over their genetic identity even if the company is acquired by another firm.

Who is mentioned in the record

Potentially affected actors named in the source documents. Mention is not a position.

Direct-to-consumer genomic testing companies

These companies must develop new procedures for data access and deletion, provide specific notifications, and comply with FTC enforcement.

Consumers

Individuals using commercial genomic services gain new legal rights to control, delete, and track the ownership of their genetic data.

What changed

Current stage: IN_COMMITTEE.

What's next

Floor Vote.

Summary

This bill grants consumers the right to access, delete, and request the destruction of their genomic data and s held by direct-to-consumer testing companies. It also requires these companies to notify customers if their data or the company itself is sold to another entity.

Key Facts

You don't have to trust us. Each fact below is taken straight from the official document - click any one to see the exact passage, highlighted in the original.

Frequently Asked Questions

Does this apply to my doctor?

No. The bill specifically excludes health care professionals who perform genomic testing for the diagnosis or treatment of a medical condition.

Can I delete my data if it is being used for research?

The bill excludes '' genomic data used for medical or scientific research from the definition of genomic data subject to deletion, provided it complies with existing HIPAA privacy regulations.

What happens if my DNA testing company is bought by another company?

The company must notify you at least 30 days before the sale is finalized, including the identity of the new owner and information on how to exercise your rights to access or delete your data.

Why It Matters

If passed, this law would establish federal standards for how private companies handle sensitive DNA information, ensuring individuals maintain control over their genetic identity even if the company is acquired by another firm.

News Coverage

No news coverage found yet. Articles are indexed twice daily.

Discoveries

Patterns POLISCOPE noticed across the record. These are observations to investigate, not conclusions.

policy shift90% confidence

Federalization of Genetic Privacy

The bill attempts to create a federal floor for genetic data privacy while explicitly allowing stricter state laws to remain in effect unless they conflict.

Federal Trade Commission

Connected Entities

personPeters“Co-sponsor of the bill”Map →

organizationHealth Insurance Portability and Accountability Act of 1996“Section 264(c) referenced for data sharing regulations”Map →

organizationU.S. Government Publishing Office“Source of the bill”Map →

personCassidy“Lead sponsor of the bill”Map →

organizationFederal Trade Commission“Responsible for enforcing the bill”Map →

Analysis Score

0–100

Significance75
How much this matters to a regular citizen
Controversy40
Intensity of disagreement among stakeholders
Entertainment10
Compellingness for a non-policy-wonk reader
Buzz30
Current news / social attention level